Vitiligo Archives - Page 2 of 2

World Vitiligo Day June 25th

June 25, 2015 by Alisha 6 Comments

A year ago if you asked me about vitiligo I would have just dismissed it as “the condition that MJ had”. But fast forward to today and it’s now a part of our life. A year ago my youngest daughter, Morgan, started developing a few white spots. (Check out the post HERE) Within a matter of months those spots began to spread and before the end of the summer her knees, feet, elbows were completely white and several large spots on her face.

World Vitiligo Day is an annual day specially dedicated to people with vitiligo. Conceived by patients for patients, World Vitiligo Day is a truly global event that aims to increase awareness of vitiligo and raise funds needed for research and education.

The idea of a World Vitiligo Day was first put forward by Steve Haragadon, the founder of the Vitiligo Friends network from USA and then later developed and finalized by Ogo Maduewesi, a vitiligo patient who is the Founder and Executive Director of the Vitiligo Support and Awareness Foundation (VITSAF) in Nigeria. In early 2012, the VR Foundation has launched the 25June campaign and the dedicated website. Read full story on Wikipedia »

Over this last year I’ve done a lot of reasearch and discovered that there is so much that is unknown about vitiligo. We met with a dermatologist and he prescribed a cream which did absolutely nothing. And what was worse is that he was pretty nonchalant and didn’t really have any suggestions on how to even keep her skin protected. It wasn’t until I started to reach out to the vitiligo community did I get a better grasp of this condition.

I’ve been blessed to learn so much from others about how to help my daughter deal with her changes and how important it is to use sunscreen. I met Lorena of Just My Vitiligo on instagram and she’s been so nice at helping give me tips and encouragement for my daughter. I also came across this clip from the show “What Would You Do?”

What would you have done if you were there? The sad part about this video is that there are so many people who actually feel this way. I’ve even had people ask me if my daughter’s vitiligo is because she’s biracial…smh!

I’m just glad that Morgan is happy and healthy and that’s what we’ll be celebrating today!

My Daughter Wants to Hide Her Skin

May 4, 2015 by Alisha 46 Comments

Last month I took a leap of faith and decided to add a new segment to the blog for vitiligo awareness. I was overwhelmed by the support from my fellow bloggers and my awesome readers. Today I had planned to talk about how important sun safety is when you have vitiligo, but I wanted to switch gears after I started to notice something I was seeing in Morgan.

As the weeks pass by the weather has been getting warmer in our part of the country, but my daughter still insisted on wearing a sweater and leggings with her skirts to school. I didn’t really pay much attention to it until it got hot! So I finally asked her if she didn’t want anyone to see her beauty spots. At first she dismissed it and then said yes. I can’t even tell you all how much that hurt me inside. I’ve been trying to approach talking about her vitiligo with her delicately because I know she’s not comfortable when I ask her about it. I asked her if any of the kids said anything to her and she said yes but couldn’t remember. [Read more…]

Why did MY daughter have to get Vitiligo?

April 2, 2015 by Alisha 39 Comments

Why did my daughter have to get Vitiligo? That’s a question that I’ve struggled with a lot over this last year. As parents we want nothing but the best for our children. We want them to be happy, love life and healthy. With everything going on in the world, I feel guilty at times for always asking “Why her” or “What did I do wrong?” Last year I did a post on Helping Children Deal with Vitiligo. When I wrote that piece my 5-year-old daughter was just started to show signs of having vitiligo. I noticed white spots on her hands and feet and dismissed them as scars since they were so small. As the Summer ended and she spent more time outdoors, I noticed those white spots got larger and started to spread to other parts of her body. [Read more…]